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Canadian Down Syndrome Society calls prenatal testing recommendations for Down syndrome discriminatory
February 1, 2007
The recommendations, published in the Journal of Obstetrics and
Gynaecology Canada, indicate that all expectant women should undergo
prenatal screening for Down syndrome; previously, this was primarily
"We know that information is important for prospective parents
to make the best decisions for their family. For families undergoing
prenatal testing, it is critical that value-neutral information
be conveyed about the
The CDSS hopes that just as the SOGC extends its recommendations for more Down syndrome screening, the organization would emphasize the importance of impartial information to prospective parents.
Flint says the CDSS is also gravely concerned about the possibility of a future without citizens with Down syndrome.
"People with Down syndrome enhance the learning, lives and citizenship in our schools, workplaces and families," says Flint. "My children's children may inherit a world without Canadians with Down syndrome - and that's not a good future."
CariAnn Hougen, an adult with Down syndrome, says the testing seeks to eliminate people specifically because they have Down syndrome - people like her.
"The idea that this testing will eliminate people like me
is horrifying," says Hougen, chair of the Voices at the Table
Advocacy Committee, a group of 11 adults with Down syndrome from
across Canada who
The Canadian Down Syndrome Society (CDSS) is a vital resource linking individuals, parents and professionals through advocacy, education and providing information. The mission of the CDSS is to ensure equitable opportunities for all Canadians with Down syndrome. This means, to make sure all Canadians with Down syndrome have the right supports to give them the same opportunities that everyone else has. Our vision is a proud Canada where ALL are welcome, we embrace diversity and we value everyone's genes equally.
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